I am so thankful for the foundation and all of the other parents and friends that I have made who have a loved one with CdLS! We wouldn't be where we are today with out them! They have helped us through some difficult times and have answered questions that we have had.I am also thankful for our pediatrician who was able to diagnose Vinny with in seconds of looking at him following his birth. He had read about this syndrome while he was in medical school. Only if all pediatricians where this familiar with the syndrome! This is a pic of Vinny only days after his birth.....
Friday, May 8, 2009
Happy CdLS Awareness Day
Happy CdLS Awareness Day- May 9th !!
I should have gotten on this post sooner, but busy is life! I wrote our local newspaper, The Omaha World Herald, about this day and Vinny's story. They published it in the Public Pulse section. I was unable to find a link to it, so when I get a hard copy of the article, I will scan it for you all to read.
Heidi at Gods Grace in Practice has challenged us all to "spread the word" about CdLS. I think all of us with little ones in our lives spread the word on a daily basis. There are so many undiagnosed kids out there, that I wish more people were aware of this syndrome! So please help spread the word. The CdLS foundation website has a wealth of information to share...please pass this on to others.
Posted by Staci at 10:24 PM