Vinny and I had an opportunity to meet several families that have children with CdLS a few weeks ago ranging from 5 months to 29 years old. We had a wonderful time meeting these amazing families. It was nice to talk with parents that are going through or have gone through what we are. It was reassuring to see how happy these little people are!
Josie (5 months)
Each one of these kids are unique and have progressed through life at their own speed. They all have varying degrees of abilities. Once again God has shown me to just take one day at a time and be thankful and happy for what each day brings us with Vinny!
As I was driving home from Lincoln, I was thinking how funny it was how a single syndrome could bring all of us together and immediately we all have something in common. I am so glad that I have met these families and look forward to staying in contact with them.