Just yesterday, I was reading one of the blogs that I follow God's Grace In Practice . Heidi wrote this post "Talking to your child about disabilities". I thought that it was very interesting and wondered what my boys thought of Vinny and what they would actually tell other people if asked about him. This is something that I put in the back of my mind on my "list" of things to talk to them about.
Well today, Avery, Leo, Vinny, and I were sitting in Subway enjoying our footlongs and pizza chatting away. This little girl (about 5 I would say) kept staring at Vinny (I was holding him in my lap). I motioned for her to come over and was going to explain to her about his tube in his nose (we get lots of stares and questions from little people- I explain this alot). This is how the conversation went...
Little Girl: "What is wrong with him"?
Before I could say anything, Avery piped in...
Avery: "Nothing--he has CdLS".
Little Girl: "What is that"?
Avery: "That just means he is "SPECIAL" ".
Little Girl: "Oooh, he is cute!"
And she walked back to her table.....
So after this conversation, I asked Avery if he knew what CdLS meant and he said sure...."it just means Vinny is special and may be just a little bit different, but Mom eveyone is different, people are different colors, fat, skinny, short, tall, wear glasses, some even use wheelchairs to get around...thats all".
I am so proud of my boys...I had never "officially" sat down and had a conversation about what CdLS is. I guess they are just smart and have figured it out over the past nine months observing and listening to all of the talk about Vinny.
Vinny is the luckiest kid around to have such three wonderful brothers that love him so much!